Monday, October 29, 2018

When it Comes to Supporting Grieving Children, Parents Need all the Help They Can Get



When our son Jack died in an accident, our daughter Margaret, had just turned ten. I was not sure how to help her navigate her grief as I dealt with my own. Some things felt instinctual: helping her feel safe, staying close to home, and being as stable as possible even though the world seemed upside down and terrifying. I chose not to drink alcohol for several months so I could be fully present, and my husband and I tucked her little frame between us each night even though we had not been a bed sharing family before. 

Our loss left us reeling, and beyond the basics of eating, sleeping, and working, we had little energy left to figure out how to best support our daughter. Bereaved parents in our community reached out share about support meetings and books that helped them when their own devastation was fresh, but few had resources specifically for our daughter. Well-meaning friends asked us whether we were getting her therapy. We were, but it was an epic struggle, and we questioned each step we took— was this the right therapist? Should we persist when Margaret pushed back? What kind of support would be best for her?  

It never seemed fair to me that when someone is newly-diagnosed with cancer or another disease, family members and the patient himself must quickly become experts in subjects that were foreign to them just moments before diagnosis. Understanding the science, protocols, and the mysteries of insurance policies seemed to rest upon already-weary shoulders. Likewise, we found ourselves on a crash course in grief in our most depleted state. The loved ones who became our primary support after Jack’s death were grieving as well, so it was difficult for them to connect us to help.

In the years since Jack’s death, my work as a writer and speaker has introduced me to many resources available for grieving children and families. Camps like Comfort Zone Camp and Camp Erin, support groups, retreat centers and numerous grief organizations such as The National Alliance for Grieving Children do amazing work to cultivate resilience in young grievers. Often, what they do stems from needs they encountered while mourning a death in their own families.

My new children’s book, A Hug from Heaven, is something I wish we’d had for Margaret when Jack died. It’s a book for a child who has experienced the death of ANY loved one. It shows that a range of emotions is appropriate, it models healthy grieving, and it encourages memorializing and celebrating the loved one who died. What makes it unique is that it encourages kids (and adults) to look for “hugs from heaven” -- signs from their loved ones that show that even if a person dies, their LOVE does not. 

Your child may not be grieving, but I’m guessing you know a child who is. After all, 1 out of 5 children will experience the death of a close loved one by age 18.Perhaps you could be that person who sees a need and steps in with specific resources when it seems too overwhelming for immediate family members to figure out. Buy a book, give a ride, connect them to a local grief center, find the name of a great therapist for them—and maybe even make the call to set up the first appointment. Not everyone can do everything for a grieving child, but whatever you do will show that you care and help make a devastating time more bearable. 

To order A Hug from Heaven ($14.95), please email ahugfromheavenbook@gmail.com or purchase through Mascot Books or Amazon.



Friday, October 19, 2018

Pain: Royal, Growing, and Otherwise

When Meghan Markle and Prince Harry announced their pregnancy on Pregnancy and Infant Loss Awareness Day, it struck some as quite insensitive. I get that, I do. Social media can be a mine-field when you are grieving, and seeing such happy news all over the place when you are feeling the pain of your own loss can be devastating. I have felt that many times.

It reminded me that even in our depleted state, grievers are often the ones who must educate others about being aware and sensitive. People don't know what they don't know. Those who shared their pain about this topic helped spark important conversations and encourage future understanding for not just the royals, but for society in general.

It sure would have been helpful for a trusted advisor to have suggested the royal couple wait a few days to announce the pregnancy, but on their own, Harry and Meghan did not know enough to know better. In fact, I would hate for them to know better, because if they did, perhaps that would mean they are one of the many, many couples who have found out the hard way what so few talk about-- that miscarriage, stillbirth, and infant loss happen. A lot.

But what about me?

I can't give myself a similar pass. I was so excited about Meghan and Harry's news that I posted it right away on my An Inch of Gray Facebook page. About a minute later, upon realizing the date, I took it down. I didn't want to cause grieving parents more pain on my page, a page that I hope is a safe place. In the same way, I understand if some bereaved parents have had to step away from my Facebook page because of frequent Andrew pictures, something I didn't "get" before Jack died.

My wish is that NO ONE would know the pain of child loss. But since I DO KNOW, it is my responsibility to do better. To be more sensitive. To acknowledge. And to help educate those who just don't know.


***
Children's Book Update:

A Hug from Heaven is available NOW from Mascot Books and for Preorder on Amazon! It is a wonderful gift for a child grieving the loss of any special person.




Tuesday, October 9, 2018

Things I'd Rather do than "Play Cars"

Yes, he's a miracle.

Of course, he's adorable.

No, I don't want to play cars 12 hours a day with a toddler who has his bossy-boots on.


Things I'd Rather do than Play Cars: 

1) Receive a dental cleaning after not flossing for 6 months
2) Hand-wash a sink full of dishes, lasagne pan included
3) Fill out camp forms and physicals
4) Attend Traffic court
5) Go to the gyno, pap smear optional
6) Watch an Adam Sandler movie
7) Do laundry
8) Whip up a Greek God costume
9) Sort my sock and underwear drawer
10) Order a yearbook online











Friday, September 28, 2018

Sneak Peek at A Hug from Heaven!

Hi Dears!

The new children's book is READY! I have held it in my hands, and it is big and beautiful. It even smells good!

Mascot Books is already taking preorders on their site.

If you would like a SNEAK PEEK of the entire book TODAY, I have set something up on my author website just for you. You just enter your first name and email HERE, then I immediately send you an email with the PDF of the book! I hope that you will agree to be an Advance Reviewer and leave an honest review of the book on Amazon on Nov 6, RELEASE DAY! I know a PDF doesn't take the place of a big, beautiful hardcover book, but I hope it will give you an idea of what the book is like and help you start thinking of kids you know who will benefit from it.


It is my prayer that this book will comfort many children who are grieving the loss of a loved one, and with your help, we can get the word out!


Friday, September 7, 2018

Seven Years

Tomorrow, September 8th, it will be 7 years since Jack's accident.

Sometimes it feels like a thousand years, and other times a blink of an eye. If you are newly bereaved, I know the thought of someone writing about child loss SEVEN YEARS LATER may seem frightening and distressing. It's too much and too scary to think too far ahead, to let the collateral losses of what is to come pile up on the acute loss you are feeling right now. It's hard to imagine enough strength for the journey of weeks, months and even years ahead.

Today is the one day you need to get through.
To breathe through.
To drink enough water to rehydrate after your tears have run dry.
Today only.

It seems like I don't write much about my own grief here or on Facebook these days, preferring to share what others who are deep in the muck capture with such naked eloquence. There is so much wisdom out there. One of the reasons I wrote Rare Bird so early on, was to capture raw, early grief in real time. I wanted to capture it, but I didn't want to stay there, and I wasn't sure if I'd want to revisit it again and again. I didn't know if I could ever say, or if I even wanted to say, that I was healed, especially if that entailed leaving Jack behind, but I knew that I wanted to be able to say,  even early on, that "I'm healing." In those early days, as I wrestled and wrangled and poured out my heart on this keyboard, you showed up day after day to bear witness to my pain. Thank you.

Now, I feel more like a coach, an ear, or even a light-- illuminating a path up ahead that while almost too scary for the newly bereaved to contemplate, provides more than a degree of hope.

Shortly after the accident, a wonderful fellow blogger sent me this painting one of her friends made for me. It captured the closeness of our family, with a big nod to the numerous signs of comfort we received related to birds.  Jack is reaching out to the sky, to the future, his future. I see this small painting every day and I love it.



Now that our family is no longer in the cloud of grief, I consider this painting anew.

While I used to think it represented our family: Margaret, Tim, Anna and Jack-- with the bird bringing us comfort from above, I now wonder if it now represents Margaret, Tim, Anna, and little Andrew, with the bird being our rare bird, Jack, who continues to comfort us, guide us, and cheer us on, even after all of these years.


For those of you who look at grief as a LIFE SENTENCE-- a life sentence of sadness and pain-- I'd like to suggest reframing it as a LOVE SENTENCE. Your love for the one who died, and his for you, will never diminish. It will stay real and vibrant all the days of your life and beyond, and eventually you will be able to think of him with a love that is no longer tainted by the LACK that feels so strong right now.

That is my experience most days at 7 years in, and it is my hope for you, for me, for all of us.


Monday, August 13, 2018

A Welcome Balm

Thump, thump, thump.

I could hear the balls hit our basketball hoop and then the ground. I couldn't see them from my kitchen table a few feet away, because I'd taped temporary paper shades on the glass in the door and over all the windows.

One by one, my new friends-- friends who had each had a son die-- turned the handle and came inside. They'd parked in the crowded driveway we shared with our neighbors, dodged the basketballs in our carport, and come to our grief support group.

"I don't know how you do it!" they each said to me.

This was a phrase they'd likely heard themselves many times. How did they make it through multiple rounds of chemo with their precious boys? How did they tell their sons they weren't going back to school? How did one go into her son's bedroom to wake him, but find him dead?

They knew they were not made of stronger stuff than other moms. They'd just been thrust into unwelcome, nearly untenable situations that they couldn't run away from. They knew that grieving moms are just people doing the best we can.

But that night they said it to me, quickly piecing together that the boys playing outside my door were the ones who were with Jack when he had his accident. While I'd never experienced hospitals, blood draws, invasive tests, toxic treatments, and having Jack lose his beautiful hair, I was experiencing something excruciating as I saw Jack's best friend, and his new best friend, bond and live and play right in front of me, day in and day out. The stark contrast between these living children and my dead son was almost too much to take, and these mothers' hearts recognized that in an instant.

I talked about this with my pastor and friend, Glenda. I felt terrible for feeling angry and uncharitable toward children-- so jealous and petty. My magical thinking would have one of them die, while Jack would live. This was so far from how I wanted to be-- Anna The Super Griever who spread her love and warmth like fairy dust-- but it was real, and raw, and exactly where I was.

There would be no warm and fuzzy tv special about how I'd taken the boys in as my own, cultivating a surrogate mom role to make up for losing Jack.  Nope. So, I piled guilt on top of my anger and grief.

But I wanted to feel my pain and anger and not cover it up by pretending like everything was okay--faking kindness and compassion that wasn't yet there. Grieving Jack felt too holy for anything other than truth and light and 100% honesty.

After hearing all of this, Glenda touched my hand and rubbed it gently. She said, "If your hand is raw and in pain, there is nothing wrong with finding a balm to soothe it. To coat and protect it as it heals. That's not weakness. You don't need to feel guilty. That's just taking care of yourself."

I honestly couldn't think of one thing that could be a balm in the colossal missing and longing for Jack. But as those early days turned into months, and then into almost 2 years, a balm came into view.

I was healing, I could tell, but the pain of seeing the two boys multiple times a day continued to be incredibly painful. I made the difficult decision to move our family to a new house, even if it meant dragging Tim and Margaret along with me. It was not a savvy financial decision. It was very hard on Margaret as it represented her leaving her childhood behind. It meant driving over the creek where Jack was found multiple times a day. It meant leaving Jack's room behind.

But it was a balm.

Of course I still felt grief and pain while I healed, but that rawness, that fresh pain anew every single day, was coated by a bit of distance, just as ointment buffers and protects a wound.

This month it will be 5 years since we moved. Our windows are bare and the light streams in.

I was not a bad griever, or a bad person, for recognizing my need and doing something about it. For letting myself off the hook of being the comforter for everyone else, including my neighbors.

If you are hurting right now, feeling the sting of loss and disappointment or dreams unrealized, perhaps you, too, could find a balm. Something unexpected and sweet that doesn't numb you from your experience, but gives you a bit of a buffer of protection.

Is your balm to decline from going to baby showers or weddings? Is it to walk away from a friendship that causes you nothing but pain? Is it to log off social media for a good long while?

I don't know, but I send you love as you consider it.

Wednesday, August 8, 2018

Help Grieving Kids and Comfort Your Heart Too

As you know, I've had a bunch of t-shirt ideas bumping around in my head. I created a few awesome shirts to sell on Amazon, and while the shirts are gorgeous, I've been less than thrilled with my ability to communicate with the company when the need has arisen.

So when I got a new t-shirt idea, this one VERY CLOSE TO MY HEART, I decided to look into alternatives. I chose to use a fantastic company, Custom Ink, and it has been the perfect fit.

My friends and I have used Custom Ink for years to design cool shirts for sports teams, family reunions, and concerts, and it has been a 100% awesome experience. I remember last year when we were on a time crunch to get Margaret's field hockey T's ready for Senior Night, and a real live person at Custom Ink made sure they arrived with a few days to spare.

But what I didn't know was that Custom Ink also has a fundraising platform! 

I could design a t-shirt (or have Custom Ink's artists do it for me) and have people purchase it online as a way to raise funds for a cause I believe in. I wouldn't have to worry about inventory or shipping either, because Custom Ink would take care of all of that for me. Thank goodness.

In honor of my children's book about grief coming out this fall (A Hug from Heaven), I knew I wanted to raise money to help grieving kids. 

I chose Comfort Zone Camp as the recipient of any profit these shirts make. Comfort Zone was a safe place of healing and growth for Margaret and our whole family after Jack died, and being with other grieving kids helped Margaret feel less strange and alone. There are so many grieving kids who need our support. Did you know that one in five kids experience the death of a close loved one before age 18?

Many, many of my readers have experienced the death of a loved one, and I hope this simple t-shirt speaks right to your heart the way it does to me. Love Never Dies. 



It comes in a variety of colors and styles, including kids' sizes, and is super soft and comfy. 

If you decide to purchase it for yourself, or for someone else, may it be an encouragement to you that death ends a life but not a relationship. Your purchase will help spread hope to the kids aged 7-17 who attend Comfort Zone Camps each year. 

Thank you for your support of this campaign! And if you are looking for an easy and enjoyable way to spread your message and raise funds for an important cause in your life, check out Custom Ink. They made this process a breeze.

This post is sponsored by Custom Ink. Thank you!